GI Baili

GI Appointment:

Dear Friends,

If you are interested in our angel Baili. Here is an update: So Baili… She had a GI appt yesterday at Scottsdale Hospital with our wonderful doctor – Dr. Gary Silber. He is the best in the business, my opinion. However it really wasn’t good. Unfortunately she lost weight. There is a lot to it and I don’t feel like typing it all out because all it does is make me cry. But she lost 7 ounces. She is down 7 ounces in a month time. Which is A LOT for a baby especially Baili. She was 21 pounds 4 ounces. A month a go she was 21 pounds 11 ounces. She needs to be gaining 5-6 grams a day at her age. She was gaining 11 grams a day when on the tube? This was phenomenal. Now we are off the tube. This was my decision. I thought she was drinking and eating like a pig and the doctor told me three cans a day she doesn’t need the night time feeds…

We have been off the tube for 3 or 4 weeks now around August 23rd ish… So maybe she was retaining more calories by eating a lot and drinking whole milk daily and then getting formula at night with high calories? Now she is drinking 2-4 cans of Pedisure a day and eating her three meals to the best we can get down her. Can’t force a child to eat, creates HUGE negativity about food. Sometimes she’s a pig. Sometimes she is a bird. Just depends on Bai’s mood. It is very frustrating to say the least for me. Because seriously she EATS and DRINKS!! She drinks Pedisure at least 3 cans a day which is high calorie! It saddens me because I really don’t know what to do anymore?? I HATE the **** tube. I don’t want it on her. You know why? Hundreds of reasons!!!! But mainly she has gotten so mobile in the last 3 weeks being off it. Maybe it has no significance what so ever? Maybe I am wrong? Maybe I am crazy? But she is CRAWLING! She is pulling herself up a little. She can sit up from any position, in bed, ground, anywhere! DID I SAY SHE IS CRAWLING!!! She attempts the stairs, not successful but attempts them. I think once she could sit up from laying down things were multiplying for her. She waves, bye, hi, can point to her head, starting to know body parts, claps, some signs, she is picking things up that she never did.

If she doesn’t gain or maintain weight by the next visit 10/13/10 then we are going to do future testing to see if she has well testing on many things to see why she won’t gain or maintain weight? If all is negative we will go back on the tube. I hate the tube. But at least it will give her the calories she needs? Doc says you need to gain and maintain to develop properly and for now she is only in the 2 percentiles for her age. She also has always had issues pooping, both girls. Trying new meds for that and we will see. A lot involved with that – that I won’t bore you with… She is NOT reflexing/vomiting either anymore. I personally think she was getting way too much formula at night and puking it up, but I am not a doctor. We weaned off one med and weaning off another as we speak for that.

Positive note she is a HAPPY bug!! SHE IS CRAWLING!! My angel is happy and playing and crawling and messing up my house more to my likes but oh well! She is in the stage Kirra was at about 12 months. Messing up all my chores, my clothes everywhere, and toilet paper, anything she can get her hands on she does it now. It’s annoying because I am used to her staying put and it’s all good. But I am so thankful she is mobile now!! Exploring her world!

Sometimes there are no answers all we can do is pray. I pray she has nothing wrong why she can’t gain. Because she was fine on the tube? I pray her rash on her legs right now isn’t exema again, because that’s a whole other story. Back to that doctor (pediatric dermatologist) if it is, yes she has one of those too. I pray for a lot of things.