Baili

Baili is starting to crawl today.
It's a beautiful day.
She was with her Dad.
I absolutely couldn't believe it.
She has been trying for a little bit okay a long bit.

Today's post is about Baili. As some may know we go through a lot with our little Baili. As you know she was born at 3 pounds even. She lost a pound and was down to 2 after she was born - maybe even less but the doctors wouldn't tell us cause all it does is worry parents more.

She was in the NICU for 13 or 14 weeks straight. She has spent millions like over 3 on doctor bills. I am not kidding when I say she is a million dollar baby. She is our angel, she is our miracle. She is now starting to babble and talk - baby talk. Eating full feeds orally. She is quite the little piggy. She is drinking like crazy - her pedisure. She was on the tube for the last 21 months. SO is this a big accomplishment? Is this something we weren't sure she would accomplish? This is a big deal. Baili gets every drop of assistance I have found and researched to have her 100% caught up by the time she is 5. AZ doesn't guide you well as a parent, but what I say, research, research, research, research. I have been asked to be on the hospital NICU committee to help parents have a guide where to go or start outside of the NICU.

Will she catch up? We think so. We pray so. We KNOW SO. All docs seem to think so. Is it hard to explain what we do with Baili, yes. I don't wish it on anyone, ever. Try the NICU for 14 weeks, day in, day out. 24/7 with two kids in the NICU and tell me, oh it's easy. Having a child with over 20 different doctors, because people don't get it. I don't wish them to know or ever experience it. This is not a post to explain, it's a post to some they may understand one day. I was a new mother to twins 21 months ago and never knew what a "preemie" meant. Most never live that...and again I don't wish it on anyone. But am I a little over protective parent over both twins? Yes, 150% guaranteed. ;)

But when people ask me... When is she getting the tube out? When is she going to crawl? When is she going to drink enough? When will she eat enough? Is she walking? Is she talking? Well here are some answers... She is trying. We get OT, SP, DSI, and PT weekly. WE also get DSI II bi-weekly. We are trying.

Yes she is eating 100% orally and drinking 100% orally now. For those in the know it is truly amazing. She has more doctors than I have ever even heard of before all this. She is 100% preemie, doing wonderful. She is behind. She is. She is trying. She is PROGRESSING A TON everyday. Like today when her Dad text me "she is crawling" it was like someone offered me a million bucks. It's hard to explain. The preemie world in my opinion is not normal. It is everything but normal. Try being on a roller coaster ride everyday. Try praying everyday just for your child to eat, drink, crawl, use her legs. Try praying for her to drink and being up all night praying she will drink the next day, so you don't have to use the tube. Trying praying for her to go poop. All these things that non preemies do naturally. Try going to hospitals monthly (used to weekly) for therapies. Try just praying that someone could understand and quit asking questions, why? I don't know why. We don't know why. I just know our Baili looks and acts 100% normal. WE ARE BEYOND BLESSED. She is FINE and HEALTHY! She is our MIRACLE. She is our life and our angel along with Kirra.

Her Gramma was balling in Seattle, I was balling, we were all balling when we heard she was crawling today. It is amazing. Hard to explain to people who have babies on time, no problems, that do everything they are suppose to do on time. I wish my Baili would just do it all on time. But God choose Baili for Josh and I to care for her. I tell Baili everyday how wonderful she is. How she is the best baby on the planet. She is our angel along with Kirra. She is our miracle. Going to Neurologist, GI, Surgeon, Pediatrician, where ever we are going we have faith that God will take care of us and Baili. He always has and she has always been doing GREAT. Along with my Mother and Grandmother watching over her.

I can't wait for her wedding day when I am balling and someone asks me what's wrong with you? I will say then what I say now, "you just don't understand." Again I don't wish anyone to understand. I don't wish a tube in your babies tummy, ever. Until you have to deal with it as your child it's just to hard to explain.

As for today Baili is doing her DSI, OT, PT, SP, weekly along with all her docotr appts. She is progressing and trying so hard. She is UNBELIEVABLY happy baby and with her best friend every day (her soul mate Kirra). They are attached and have a bond I cannot explain, they have never ever even fought. Is Baili going to be okay and caught up? Yes. She will. She is perfect in every way. I just hope this answers a drop of some people's questions. But still it is hard to explain when "people just don't understand."

Both my preemies are doing wonderful. They are doing just great. Thank God for NICU, nurses, doctors, and loving people in my childrens lives. We are so blessed. As for today she is catching up and doing WONDERFUL!!