Baili

Baili is starting to crawl today.
It's a beautiful day.
She was with her Dad.
I absolutely couldn't believe it.
She has been trying for a little bit okay a long bit.

Today's post is about Baili. As some may know we go through a lot with our little Baili. As you know she was born at 3 pounds even. She lost a pound and was down to 2 after she was born - maybe even less but the doctors wouldn't tell us cause all it does is worry parents more.

She was in the NICU for 13 or 14 weeks straight. She has spent millions like over 3 on doctor bills. I am not kidding when I say she is a million dollar baby. She is our angel, she is our miracle. She is now starting to babble and talk - baby talk. Eating full feeds orally. She is quite the little piggy. She is drinking like crazy - her pedisure. She was on the tube for the last 21 months. SO is this a big accomplishment? Is this something we weren't sure she would accomplish? This is a big deal. Baili gets every drop of assistance I have found and researched to have her 100% caught up by the time she is 5. AZ doesn't guide you well as a parent, but what I say, research, research, research, research. I have been asked to be on the hospital NICU committee to help parents have a guide where to go or start outside of the NICU.

Will she catch up? We think so. We pray so. We KNOW SO. All docs seem to think so. Is it hard to explain what we do with Baili, yes. I don't wish it on anyone, ever. Try the NICU for 14 weeks, day in, day out. 24/7 with two kids in the NICU and tell me, oh it's easy. Having a child with over 20 different doctors, because people don't get it. I don't wish them to know or ever experience it. This is not a post to explain, it's a post to some they may understand one day. I was a new mother to twins 21 months ago and never knew what a "preemie" meant. Most never live that...and again I don't wish it on anyone. But am I a little over protective parent over both twins? Yes, 150% guaranteed. ;)

But when people ask me... When is she getting the tube out? When is she going to crawl? When is she going to drink enough? When will she eat enough? Is she walking? Is she talking? Well here are some answers... She is trying. We get OT, SP, DSI, and PT weekly. WE also get DSI II bi-weekly. We are trying.

Yes she is eating 100% orally and drinking 100% orally now. For those in the know it is truly amazing. She has more doctors than I have ever even heard of before all this. She is 100% preemie, doing wonderful. She is behind. She is. She is trying. She is PROGRESSING A TON everyday. Like today when her Dad text me "she is crawling" it was like someone offered me a million bucks. It's hard to explain. The preemie world in my opinion is not normal. It is everything but normal. Try being on a roller coaster ride everyday. Try praying everyday just for your child to eat, drink, crawl, use her legs. Try praying for her to drink and being up all night praying she will drink the next day, so you don't have to use the tube. Trying praying for her to go poop. All these things that non preemies do naturally. Try going to hospitals monthly (used to weekly) for therapies. Try just praying that someone could understand and quit asking questions, why? I don't know why. We don't know why. I just know our Baili looks and acts 100% normal. WE ARE BEYOND BLESSED. She is FINE and HEALTHY! She is our MIRACLE. She is our life and our angel along with Kirra.

Her Gramma was balling in Seattle, I was balling, we were all balling when we heard she was crawling today. It is amazing. Hard to explain to people who have babies on time, no problems, that do everything they are suppose to do on time. I wish my Baili would just do it all on time. But God choose Baili for Josh and I to care for her. I tell Baili everyday how wonderful she is. How she is the best baby on the planet. She is our angel along with Kirra. She is our miracle. Going to Neurologist, GI, Surgeon, Pediatrician, where ever we are going we have faith that God will take care of us and Baili. He always has and she has always been doing GREAT. Along with my Mother and Grandmother watching over her.

I can't wait for her wedding day when I am balling and someone asks me what's wrong with you? I will say then what I say now, "you just don't understand." Again I don't wish anyone to understand. I don't wish a tube in your babies tummy, ever. Until you have to deal with it as your child it's just to hard to explain.

As for today Baili is doing her DSI, OT, PT, SP, weekly along with all her docotr appts. She is progressing and trying so hard. She is UNBELIEVABLY happy baby and with her best friend every day (her soul mate Kirra). They are attached and have a bond I cannot explain, they have never ever even fought. Is Baili going to be okay and caught up? Yes. She will. She is perfect in every way. I just hope this answers a drop of some people's questions. But still it is hard to explain when "people just don't understand."

Both my preemies are doing wonderful. They are doing just great. Thank God for NICU, nurses, doctors, and loving people in my childrens lives. We are so blessed. As for today she is catching up and doing WONDERFUL!!

Labor Day Weekend Pics....

Kirra Twirling with Auntie Roxy

Kirra loves to twirl...
She loves to dance.
She loves music.
Her coordination is a little rough but mine isn't that great either!
Love her!!

My best friend Roxy and Kirra had a great time dancing.
Roxy was the first one to know I was having girls at doctor's office.
Hence she was with me dressed in FULLY PINK clothes.
Hoping it would help to have at least one girl in me....
I had two of course.
My friends are so great with my girls.
It is so special. :)

We love to dance with both of them but Kirra wanted to learn to twirl.
She did pretty good for her first try.
At least she didn't fall over.

Hoping to do the Little Gym next month?

Mommy

21 MONTHS OLD TODAY, 8/30/10

Baili - Isn't she just as cute as pie?
This is the night she got out of the hospital, crazy how kids are so happy when they are home!!

The girls turned 21 months old today...
Where has the time gone?

To my knowledge the last weight check.
On my scale at home...
Baili is 22 pounds even.
Kirra is 25.8 pounds.
Both are still kind of small girlies!
Baili is short with chubby feet and a smaller frame.
Kirra is tall and slender with a pop belly.
Baili wears size 2 shoes!
Kirra wears size 6 shoes!
Both girls have been growing lots!

Kirra's feet all of a sudden are starting to look like mine, big!
She started running and using bones she never did before walking, and now her feet just grew over night. Literally. Last week she was a size 4, I promise, now a 6! Kirra is doing great, talking up a storm and such a HAPPY toddler. Loves her Momma, Dada, Baba, Papa, Nana, etc. She is very funny and beautiful. We love her to death!!! No problems at all with sick or anything with being a preemie, 12 weeks early and 3 pounds, just 21 months ago. She is caught up and doing great! We thank the lord everyday for her!!!

Baili is doing great as well. We are still off the tube! One week and counting!! She is a very happy girl!!! Loves her Mama, Dada, Kirra, and anyone else who comes her way. She is progressing daily and we pray for her each day for how far she has come. She is definitely the clown. Loves to be funny and has a deep belly laugh that is so funny. Then if she is mad she cries like someone is about to kill her. So DRAMATIC!! I start laughing at her. I was going to put Kirra's slippers on her and well she wanted nothing to do with that. She turned away and yelled and I still tried to do it... Then she tightened up and screamed bloddy murder. Once you stop she smiles. I am like really Baili? She likes to get her way! She is a doll, and a wonderful baby! Progressing every day which is wonderful!

Happy 21 months old my twins! I love you!!! SOme days you make me crazy but I love ya anyway!

Love,
Mommy

Mom and Kirra

Kirra is my best friend.
Baili is as well of course.
I am lucky I have 2 best friends!

Literally I live for these kids.
I am so lucky to have them.
Kirra went on some trips with me this weekend to do some one on one time with Mommy.
We went everywhere.
Kirra loved the Petstore.
Since it will be the closest she ever gets to having a animal at my home!
We can look though...
And visit other people's homes with pets.
Like Papa's house has cats and a dog.
Her Dad's house has 3 dogs as well.
She is kind of afraid of dogs.
She also went to Starbucks.
Pictures above from Starbucks.
She likes their baby food applesauce stuff...
She was a big hit there.
I turned around and she joined a lady's table that was drinking a coffee.
A girl my age and was so happy.
I said she is very social, she even offered to babysit.
Kirra went around and talked to everyone.
She was adorable of course!
Everyone loved her.
She went on many errands with me and did a lot of mom and daughter time. :)

Off course we had a crazy weekend, bday party to attend, and tons of other stuff to do. Overall extremely busy in my world but a lot of fun.

Happy Monday all!

Katie :)

New Multiples twins/triplets/quads website I found. :-)

http://www.justmultiples.com/

Thought I would share!
New Multiples twins/triplets/quads website I found. :-)

Thanks,
Katie

Baili is off the tube as of now. Pray for her progress!!!

Baili is a grinning fool.
Apparently, she loves the camera.
She is kind of a clown girl like that.
She knows how good looking she is.
Oh no did I say that?

Her new nickname lately is “West-Side.”
For those of you from AZ know why.
For those who aren’t well maybe if you visit AZ one day you’ll understand.
Here is a video of her normal happy self.
Video will be posted today.
The video was taken yesterday...

By the way Baili is off the tube!
Did I say off the tube?
Yes she has gone OFF THE TUBE!!!!
Only took 21 months of prayer, patience, and hard work.
GO Baili we are so very proud of you!!